User:Alex Cure JM
Cure JM Foundation is a nonprofit organization dedicated to supporting research, raising awareness, and providing resources for children, teenagers, and young adults diagnosed with Juvenile myositis (JM), including Juvenile dermatomyositis (JDM). Established in 2003, the organization partners with medical institutions, funds scientific studies, and organizes family support and advocacy programs across the United States.[1]
Cure JM’s public awareness efforts have been featured by major news outlets, including CBS News and ABC News, which have highlighted the organization's national “Walk Strong to Cure JM” fundraising and awareness campaigns.[2][3]
History
[edit]Cure JM Foundation was founded in 2003 by Tom and Shari Hume following their child's diagnosis with juvenile myositis. The founders aimed to accelerate research, expand clinical expertise, and create a community of support for affected families.[4]
By the 2010s, Cure JM had grown into a significant research funder, supporting medical centers and scientific initiatives across the United States. The foundation contributed to the development and designation of juvenile myositis Centers of Excellence, including those recognized by the University of California, San Francisco (UCSF).[5]
Mission and objectives
[edit]The mission of Cure JM is "to find a cure for Juvenile Myositis and improve the lives of families affected by the disease."[6]
Key objectives include:
- Funding biomedical research into the causes, treatments, and long-term outcomes of JM
- Supporting patients and families through education, peer connections, and wellness programs
- Growing clinical expertise through partnerships with children’s hospitals
- Raising national awareness of juvenile myositis
- Advocating for increased federal and private research investment
Programs and initiatives
[edit]Research funding
[edit]Cure JM funds clinical and translational research projects aimed at improving diagnosis, treatment, and long-term management of juvenile myositis. The organization supports research grants, physician-scientist development, and biomarker discovery programs.[7]
Several universities and medical institutions publicly document their receipt of Cure JM research funding. For example, George Washington University’s School of Medicine announced a Cure JM–funded grant to support muscle physiology and rehabilitation research for JM patients.[8]
Cure JM is also recognized as a participating organization in the International Myositis Assessment and Clinical Studies Group (IMACS), a global scientific consortium supported by the National Institutes of Health (NIH).[9]
Family support services
[edit]The organization provides resources for newly diagnosed families, organizes national and regional conferences, and offers mental health and wellness programs. Major rare-disease organizations have highlighted Cure JM’s role in expanding psychosocial support programs, including a national partnership with Global Genes to broaden mental health support for JM families.[10]
Advocacy
[edit]Cure JM engages in national advocacy efforts to increase JM awareness, encourage earlier diagnosis, and promote federal investment in rare disease research. Its Walk Strong events—held in cities across the United States—have been featured on local and national news networks.[11]
Partnerships and collaborations
[edit]Cure JM collaborates with major medical institutions that specialize in juvenile myositis care and research, including:
- University of California, San Francisco (UCSF)
- Seattle Children’s Hospital
- George Washington University School of Medicine
- Lurie Children’s Hospital of Chicago
- International Myositis Assessment and Clinical Studies Group (IMACS)
Several of these institutions acknowledge Cure JM’s research support and partnership programs.[12][13]
Impact
[edit]Cure JM has been recognized through national news coverage, academic partnerships, and rare disease initiatives. Its Walk Strong events, research investments, and national collaborations have elevated awareness of juvenile myositis and expanded the availability of specialized clinical care.[14][15]
See also
[edit]External links
[edit]References
[edit]- ^ "About Cure JM". Cure JM Foundation. Retrieved 2025-01-01.
- ^ "Philadelphia families walk to raise awareness for juvenile myositis". CBS News Philadelphia. 2024-06-02. Retrieved 2025-01-01.
- ^ "Local family raising awareness for rare disease through Cure JM Foundation". ABC 7 Chicago. 2023-05-08. Retrieved 2025-01-01.
- ^ "Our Story". Cure JM Foundation. Retrieved 2025-01-01.
- ^ "UCSF Named Center of Excellence for Juvenile Myositis". UCSF Pediatrics. 2023-12-05. Retrieved 2025-01-01.
- ^ "Mission & Values". Cure JM Foundation. Retrieved 2025-01-01.
- ^ "Research We Fund". Cure JM Foundation. Retrieved 2025-01-01.
- ^ "Joshua Woolstenhulme, DPT, PhD, receives grant from Cure JM Foundation". George Washington University School of Medicine. 2024-03-15. Retrieved 2025-01-01.
- ^ "IMACS December 2010 Newsletter". NIEHS/NIH. Retrieved 2025-01-01.
- ^ "Global Genes Announces Partnership with Cure JM Foundation to Expand Support for Mental Health–Related Challenges". Global Genes. 2024-01-15. Retrieved 2025-01-01.
- ^ "Philadelphia families walk to raise awareness for juvenile myositis". CBS News Philadelphia. 2024-06-02. Retrieved 2025-01-01.
- ^ "UCSF Named Center of Excellence for Juvenile Myositis". UCSF Pediatrics. 2023-12-05. Retrieved 2025-01-01.
- ^ "Joshua Woolstenhulme, DPT, PhD, receives grant from Cure JM Foundation". George Washington University School of Medicine. 2024-03-15. Retrieved 2025-01-01.
- ^ "Local family raising awareness for rare disease through Cure JM Foundation". ABC 7 Chicago. 2023-05-08. Retrieved 2025-01-01.
- ^ "Philadelphia families walk to raise awareness for juvenile myositis". CBS News Philadelphia. 2024-06-02. Retrieved 2025-01-01.